Skip to main content

The Power of Two

Have you heard of The Power of Two? It's an outstanding book by Ana and Isa Stenzel, half-Japanese, half- German twins with Cystic Fibrosis. This book documents their fight with CF, from birth through both of their lung transplants and the recovery road afterwards. Sometimes, a book has the amazing ability to captivate readers with its language, diction, and phrases used. Ana and Isa have created a book that does just that. Here are some reviews of the book:

I have been glued to my desk for the last three days, unable to separate myself from this wonderful account of medical illness and the amazing story told by these two remarkable sisters. I have just finished the last page with tears filling my eyes. [The Power of Two] is one of the best accounts of illness and coping with it that I have come across... this is a splendid addition to the literature of personal medical experience. -- Dr. Allen B. Weisse, Author of "Lessons in Mortality"

It is the unfortunate habit of books on illness and recovery to rely heavily on sanitized clichés. The downs are very down, the ups sky-high. This honest and carefully observed account avoids preconceived notions of the complicated path toward an organ transplant. Describing the stages of the affliction in detail, it makes you feel you were there, suffering a pain you had heard about but never really visualized, aware that death is no longer just a concept but could come at any time, and experiencing the complex emotions that come with being saved because someone else died. For readers who have not been close to a wasting disease, it will be an eye-opener, horrifying but in the end inspiring, a tale of courage being tested all day and every day. -- Reg Green, Author of "The Nicolas Effect: A Boy's Gift to the World"

One of the hardest and earliest lessons we learn is that life isn't fair. Perhaps for that reason I don't usually take to inspirational books, which often attempt to portray a particular example of misfortune as a special gift, to be appreciated for its character-building qualities, or failing that, for an advantage so mysterious that no mere mortal can discern what it might be. Fortunately, that genre is transcended by The Power of Two, an astonishing account by twin sisters born with a genetic disease that should have killed them in infancy, and almost did. But they survived that and numerous other close calls and are now in their 30's, with degrees from Stanford University, newly transplanted lungs, and a gift for writing that takes us directly into their lives. This is an intimate, brutally honest and compelling memoir. -- Jeffrey Wine, PhD., Professor of Psychology, Pediatrics and Director, Program in Human Biology, Stanford University (from Amazon.com)

This makes you want to read it, now doesn't it? I would encourage everyone to pick up The Power of Two and read it this summer. Even if you usually like fiction books better or don't think this will be your kind of book, you will enjoy reading Ana and Isa's story!

In addition, the documentary, The Power of Two is coming to the United States on June 5th. It will be available on cable/satellite Video on Demand (e.g., Comcast, Cox, Time Warner Cable, Dish, DirecTV, etc.) and digital broadband (e.g., iTunes, Amazon). So, you can watch their story, as well! I'm excited to see the documentary. :)

Comments

Popular posts from this blog

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb

The spirit of giving

It’s the end of 2017. That means it’s time to send in those end of year donations. Want to give to some amazing charities actually doing good in the world? I’ve compiled a list for you!  The Cystic Fibrosis Foundation- Obviously, I’m biased toward CFF. They fund amazing research that is saving people’s lives! Don’t you want to be part of that? Not only that, but 90 cents of every dollar goes directly to advocacy and CF research. If you donate to the Cystic Fibrosis Foundation, you know your money is going to be spent wisely and is going to make a difference. Since cystic fibrosis is an orphan disease (that means it’s really, really rare), people with CF rely on your donations to fund research. As well, Congress just cut the orphan drug tax credit, meaning companies are not going to get as much incentive for studying orphan diseases and creating drugs to treat them. The CF Foundation needs people like you to donate to CF research so we can find a cure for CF SOON. —www.cff.org