Skip to main content

Home sweet home :)

It feels so good to be home! Although I miss all my Baylor friends, my Waco church, and the Baylor atmosphere, it has definitely been nice relaxing in my own house with my family. Monday, I moved home with the help of my wonderful parents. Yesterday, my mom and I went to College Station to move Katie home. As you would guess, there are boxes all over the house! Although I have been impressed with my family's unpacking abilities. We are no where near finished (it is exhausting!), but we have finished a big chunk of the unpacking. Katie has called me her "slave driver" today because I have been keeping us to a schedule and routine with unpacking all the boxes. Personally, I enjoy putting everything back in its rightful place and cleaning junk out! I just feel so accomplished after all is said and done. Of course, the house might get a bit messier before it gets put together again, but that's the nature of cleaning.

Unfortunately, I got a cold on Monday. :( Colds are the worst!! It started out with a scratchy throat, went into congestion in my nose, and is now slowly transcending down into my lungs. OH. JOY. Not exactly how I planned to spend my first week of summer vacation, nor will it be good for my host of appointments next week. On Monday, I'm having an upper GI procedure done at 10:30 to look about issues I'm having with my digestive system. Supposedly, this procedure takes 20 minutes, and waking up from the twilight sedation takes about 20 minutes. At 1:15 on Monday, I have an appointment with my endocrinologist. Later that same afternoon, I have an appointment with my ENT doctor followed by an appointment with the audiologist.  Then, on Thursday, I have an appointment with my CF doctor. Am I crazy for having scheduled so many appointments in one week? Probably. But in my mind, I'd rather have one "doctor week" than spread them out over a couple of weeks. In addition, this summer is a summer focused on increasing my health. It's best to see all the docs as soon as possible so that I can have as long as possible to work on their recommendations.

If you think about it, I'd really appreciate your prayers over the next week and a half, especially related to the upper GI procedure. Pray for wisdom for the doctors as well as energy for me to make it through all of these appointments. Thank you so much!

Comments

  1. UnknownMay 10, 2012 at 10:17 AM

    Hope you get to feeling better soon.

    I agree having one doctor week is better.... rather than scattering them through the month.

    ReplyDelete

Post a Comment

Popular posts from this blog

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb ...
4 comments
Read more

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr...
2 comments
Read more

Traveling abroad

In May, I will be going on a mission trip with my church to the UK. I'm so excited to be a part of this mission team!! I know that God is going to work in and through us for His glory. However, I can't say I'm not nervous about taking care of all my health stuff while I'm over there. This will be my first international trip without my parents and first time to fly with all my medical equipment by myself. Even when my band flew to Seattle in high school, my mom was a chaperone and helped me check baggage, go through security and lug all my equipment around. This time, I'll have to manage all of that on my own (of course, the other team members will be with me, but I'll be the only one intricately connected to my CF and who actually knows what all I have to bring with me on the trip). On top of that, when we went to Europe for my make a wish trip, my Vest and compressor "burned up" due tonthe voltage difference, even though we used the power converter li...
3 comments
Read more