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Showing posts from February, 2016

Parody Video

If you haven't seen this parody video of Katy Perry's "Roar", stop what you're doing and follow the link below to watch it. It's seriously so encouraging to fellow CFers like me to see so many awesome people with CF doing amazing things. We will not be ignored!

parody video

Recent IV journey

It's been a month since I last blogged. Much has happened in the last month. My PFTs have been declining over the last few months. In September, my PFTs were at 62%. On January 26th, I went to the doctor to do PFTs. They were at 52%. It was time to attack the bacteria in my lungs with heavy duty IV antibiotics. I went in the hospital on January 27th. Usually, I start IV antibiotics at home. My parents have been doing home IVs since I was 8 months old, and I have learned how to take care of my IVs all growing up. I hate going in the hospital (let's be real, who enjoys being inpatient?!). I never sleep well, and I just like being home much more than being confined to a hospital bed. However, my doctor wanted to put me on an IV antibiotic that I had previously had an allergic-type reaction to, so I needed to be inpatient to ensure I didn't have a reaction. I was inpatient from January 27th-January 29th. Although the hospital was brand new, the rooms were huge, and the cafeter…