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Showing posts from April, 2014

IV meltdown

Sometimes, life throws a rock at your face. Today, I feel like I've been hit by a boulder. 
I started IVs yesterday. They were off to a rocky start when my home health nurse had to poke me five times to finally get my port accessed and working. I always have one problematic experience when I'm on IVs, so I thought the rest of the course would be a breeze. Boy was I wrong.
Today, I woke up feeling very disoriented and weak. I couldn't walk in a straight line, and everything felt weird. As it turns out, the home health medicine providers did not give instructions on how to mix the medicine to the correct dosage. I received double doses of the medicine all three times I had administered the medicine. I realized I was experiencing overdose side effects. 
The rest of today has been a battle for me. I feel like a kid trying to learn to walk again. I can't hold on to anything because I'll drop it. And all I've done is sleep, eat, sleep, take a test, sleep, and go to chur…

#CFlife

As this semester has unfolded, my health has remained pretty steady...until about two weeks ago. I haven't been able to breathe through my nose since February; after I got a cold, my nose never cleared even after doing antibiotics and nose sprays constantly. However, about two weeks ago, I started struggling to breathe because of infection in my lungs. I began to get out of breath walking up stairs and going from class to class. I started losing my willpower to work out as often as I should. I even began taking naps and sleeping way more than normal because of a lack of energy. Of course, my coughing also increased dramatically.  Therefore, I decided I needed to start a course of IV antibiotics as soon as possible, which happens to be today. My body is exhausted and needing backup, tired of having to fight multiplying bacteria. 
I would really appreciate your prayers as I go through this course of IVs. The last time I was on IVs, I was incredibly nauseous and threw up pretty regula…

A Story

I love hearing about other people's stories. Everyone is so unique, and we can all learn from each other! I especially enjoy hearing about other CF patients. Because CF is such an isolating disease, I really don't know very many people with CF. The CF Roundtable, an online newsletter for adult CF patients and their families, encourages CFers to send in their stories or their articles for the newsletter. Below is a story from a fellow CFer named Anne Willliman. Her article was published in the most recent newsletter. I enjoyed reading her story and seeing how different it is compared to mine. No two CFers are alike! Here's her story:

Last spring, I reached a huge milestone for me – I hit 60 years old. Yeah, I know that’s still young – or at least middle-aged for most. But when you have cystic fibrosis, hitting that age is pretty amazing. For all you young things out there, let me introduce you to the world of a Senior Cystic (thanks to Julie Desch for the term!). During my f…

New creation

Have you ever been super excited about something--I mean jumping up and down, wanting to tell the whole world excited--yet no one else seems to fully comprehend why you're going so crazy? Let me give you an example. This past weekend, I went to Texas A&M's ring weekend. My twin sister, Katie, got her Aggie ring, which is monumental at A&M. Sure, it's cool to get your ring at other schools (I got mine from Baylor last fall), but at A&M, you look forward to getting your ring starting at fish camp before freshman year even begins. The anticipating builds and builds until you have FINALLY completed 90 hours and are eligible for that Aggie bling. The day of the Aggie ring ceremony is full of excitement and chaos. After you get that ring (with thousands of your closest friends), you probably have a ring dunk ceremony. At the ring dunk, you put your Aggie ring in a pitcher of any liquid of your choice. You then proceed to chug said drink as fast as you can until the l…