Skip to main content

Doctor Day Numero Dos

Today was the second of the two doctor days this week. As I sit here recapping the past week, all I can say is my head is swarming with information, and I'm glad I'm finished with all the appointments for a little while.

This morning, I had an ultrasound of my abdomen done.  Besides a small kidney stone, everything looked okay (Yay! Something's normal?? How strange is that?) At 10:30, I saw my dietician for the second time. We're really trying to work on increasing caloric intake throughout the day. I especially need help coming up with high protein breakfast foods that may not mess with my blood sugar quite as much as normal breakfast foods do. Hence this very creative list of foods I will be trying in the near future:
1. 1/2 Sweet potato mixed with some sort of meat and drizzled with pineapple poblano jelly
2. Corn tortilla with beans, cheese, and avocado
3. "Oprah sandwich"--turkey, avocado, and hummus on whole-grain bread
4. Turkey sausage, cheese, and whole-grain tortilla
5. Gluten-free oatmeal, banana, and no-sugar syrup

That's just a start, of course. We came up with some other ideas, as well. None of that food is "tradition" breakfast foods. However, non-traditional breakfast foods may just be the ticket for me to increase my calories while maintaining my nutrition. We can hope, at least!

Then, this afternoon, I had an appointment with my CF doctor. Unfortunately, my weight was down (again), despite me having felt like I've been eating more lately. My PFTs (pulmonary function test) were down, as well--I'm blowing out just under 2 liters of air, which equates to about 60%. BOO! This was not exactly the news I was expecting. After a rather long appointment (2 1/2 hours, to be exact), my doctor and I decided to try a course of two different oral antibiotics to fight the lung infection and try to hold my CF at bay until middle July, when I will do a course of IV antibiotics. In the meantime, my job is to start gaining weight and continue doing my treatments/exercise regimen to stay in the best shape possible.

Can anyone besides me say thank goodness for the end of doctor week? Although it was very nice to  get all the appointments over with at once and I would do it again in a heartbeat, this week has been rather exhausting, emotionally, physically, and mentally. Now, I've got to debrief and start putting the many different plans to action!

Time to put on the boxing gloves and get to fighting!


Popular posts from this blog

CF Walk Letter 2018

Dear friends and family,
I hope this letter finds you doing well! My life looks pretty different this year from last year. In May, I graduated with my master’s in communication sciences and disorders. I started working as a speech-language pathologist in June for a company called SpeechCare, and in July, Eric and I got married. That was a very busy couple months! I love my job; I work mainly with adults with intellectual and/or social disabilities to help improve their communication skills. My clients bring me so much joy! I love being able to help them communicate better with others. Eric and I are also loving being married. Living with Cystic Fibrosis has taught us to never take the time we’re given for granted, and we are making sure we soak up all the moments we’re given and go on plenty of fun adventures. 
My health has been a bit of a struggle in the past few years. I had a round of IV antibiotics in May and then again in September and January. I will be starting IVs within the ne…

The day that was yesterday

Wow. What a day yesterday was. Here’s what happened:
At around 4:45, my hand became numb and tingly. Because I’m a knowledgeable SLP, my first thought was “oh my gosh I’m having a stroke”. Although the numbness was my first (and only) symptom, it was so bizarre how my hand just all of a sudden lost feeling in it. About 5-7 minutes into the numbness sensation, it started traveling up my arm and reached about midway up my forearm. Due to my history of a PE and being on Amicar (a blood clotter) right now because of a lung bleed, pretty much the only option was to go to the ER. I called CF clinic, and they confirmed that I should head over there. The ER is the most disgusting place, especially in the middle of cold and flu season. They also apparently have never heard of CF protocol because I had to demand to be put back in a room immediately and for everyone who came in my room to be gowned, masked, and gloved. From the beginning to the end of the 5 hour ER stay, it was pretty disastrous.…

Thankful in the hard times

With a disease like cystic fibrosis, it can be easy to get lost in all the pain, fear, and frustrations and lose sight of what we have to be thankful for. This year has been rough. I started the year with a blood clot, quickly followed by increasing worry about the state of health care in America, all while losing a significant amount of lung function and dealing with way too many lung bleeds. However, no matter how hard the year, I believe it’s always important to reflect on the many blessings we have been given. It’s too easy to wallow in self-pity and pain otherwise. So this post is dedicated to just that—thanking God for all He has given me. 
I’m thankful for... My new husband ❤️. As I’ve said before, many CFers wonder if they will ever find someone who will choose to love them day in and day out with all the stresses that come with cystic fibrosis. Being the spouse of someone with CF is not for the weak or faint of heart. My husband has taken a crash course in medical terms, health…