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Showing posts from November, 2015

Thankful Thursday

It's the third Thursday of November! It's crazy how fast this month is going. I have 7 new things that I'm thankful for this week. Enjoy :)

1. I'm thankful for the opportunity to participate in clinical trials. I recently got a call to participate in an awesome new Vertex study that has the potential to be an important discovery in the cf world (don't worry, I'll blog on this later). I'm so thankful that I have the time and the ability to participate in these studies and help make a difference in the cf community.

2. I'm thankful for scientists and researchers who have dedicated their lives to cf research. Without them, my life would be significantly different. I know cf isn't where the big bucks are, but I'm so thankful that there are people who are determined to find a cure!

3. I'm thankful for a good night of sleep. Sunday evening, I did not sleep well, and the next day, I was grouchy and struggled to stay awake in classes. I'm so tha…

Thankful Thursday

There is an emphasis on giving thanks in the month of November. Especially in our chaotic, constantly moving society, it's easy to become distracted with what others have, what we want next, and how we can improve our lives. However, what I love about Thanksgiving (and by extension, the month of November), is how we intentionally stop and count our blessings. We have been given so much. Just our next breath is its own blessing! So, because today is the 12th day of November and the phrase "thankful Thursday" has a nice ring to it, I've made a list of 12 things I'm thankful for for the first edition of November 2015 Thankful Thursday. Stay tuned for more thankful Thursday updates in November!

1. I'm thankful for a new day. I'm thankful I woke up this morning and am ready to make today a great day. I'm thankful that God's mercies are new every morning and that He is with me through the good and bad of every day.
2. I'm thankful for my family. I k…

#MyLifeMatters Repost

Prepare yourself for a rant...and then a great article. Today, I opened up the CF Roundtable Newsletter. This newsletter is for adults with CF and covers all sorts of different topics that are new and unknown in the CF world. Because people are living longer, CF adults are dealing with issues like GI problems, cancer, work-related stresses, getting married, and having children. This is all pretty new territory when it comes to how to handle adult life with CF because for most of CF history, people with the disease never made it to adulthood. It's incredibly exciting to read this newsletter every few months and see all the great things people with CF are doing.

However, one article I read in this fall newsletter absolutely broke my heart and brought me to anger. It's entitled "#MyLifeMatters" and is written by a young woman with CF who has recently been in the fight of her life to receive the new, potentially life-changing drug called Orkambi. This drug is supposed to…