Skip to main content

Thankful Thursday

1. Rain- This past week, we have had several storms pass through. Although it's no fun to drive in or to spend any time outdoors, we needed the rain very badly! Who knows, maybe the temperatures will cool off some, at least for a little while! Our grass was starting to die, it was so scorched from the lack of rain. A couple of days of rain isn't going to get us out of the drought, but it definitely has provided some relief from the constant heat.

2. Pertzye- I know the name sounds funny, but Pertzye is my new enzyme that I am so so excited about! Enzymes help my body absorb and digest food because my natural enzymes do not work properly. Pertzye is supposedly the same formula used to make Pancrecarb, the old enzymes I used that worked to help my body absorb nutrients extremely well. Pancrecarb was taken off the market about two years ago, and the enzymes I've been taking simply haven't worked as well. Pertzye could potentially keep me from having to get a feeding tube. I'm praying for these enzymes to do their thing in my body as they are supposed to!

3. Craft week- My sister has this week off from work, so she has been crafting for her apartment next year. I've joined her in crafting a little bit. I'm no artist, but I've enjoyed the projects we've been working on. Working on apartment crafts is making me excited for August, as well :) I cannot wait to have an actual living space with my roommate that we can call our own!


Popular posts from this blog

CF Walk Letter 2018

Dear friends and family,
I hope this letter finds you doing well! My life looks pretty different this year from last year. In May, I graduated with my master’s in communication sciences and disorders. I started working as a speech-language pathologist in June for a company called SpeechCare, and in July, Eric and I got married. That was a very busy couple months! I love my job; I work mainly with adults with intellectual and/or social disabilities to help improve their communication skills. My clients bring me so much joy! I love being able to help them communicate better with others. Eric and I are also loving being married. Living with Cystic Fibrosis has taught us to never take the time we’re given for granted, and we are making sure we soak up all the moments we’re given and go on plenty of fun adventures. 
My health has been a bit of a struggle in the past few years. I had a round of IV antibiotics in May and then again in September and January. I will be starting IVs within the ne…

The day that was yesterday

Wow. What a day yesterday was. Here’s what happened:
At around 4:45, my hand became numb and tingly. Because I’m a knowledgeable SLP, my first thought was “oh my gosh I’m having a stroke”. Although the numbness was my first (and only) symptom, it was so bizarre how my hand just all of a sudden lost feeling in it. About 5-7 minutes into the numbness sensation, it started traveling up my arm and reached about midway up my forearm. Due to my history of a PE and being on Amicar (a blood clotter) right now because of a lung bleed, pretty much the only option was to go to the ER. I called CF clinic, and they confirmed that I should head over there. The ER is the most disgusting place, especially in the middle of cold and flu season. They also apparently have never heard of CF protocol because I had to demand to be put back in a room immediately and for everyone who came in my room to be gowned, masked, and gloved. From the beginning to the end of the 5 hour ER stay, it was pretty disastrous.…

Thankful in the hard times

With a disease like cystic fibrosis, it can be easy to get lost in all the pain, fear, and frustrations and lose sight of what we have to be thankful for. This year has been rough. I started the year with a blood clot, quickly followed by increasing worry about the state of health care in America, all while losing a significant amount of lung function and dealing with way too many lung bleeds. However, no matter how hard the year, I believe it’s always important to reflect on the many blessings we have been given. It’s too easy to wallow in self-pity and pain otherwise. So this post is dedicated to just that—thanking God for all He has given me. 
I’m thankful for... My new husband ❤️. As I’ve said before, many CFers wonder if they will ever find someone who will choose to love them day in and day out with all the stresses that come with cystic fibrosis. Being the spouse of someone with CF is not for the weak or faint of heart. My husband has taken a crash course in medical terms, health…