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CF Walk Letter 2018

Dear friends and family,

I hope this letter finds you doing well! My life looks pretty different this year from last year. In May, I graduated with my master’s in communication sciences and disorders. I started working as a speech-language pathologist in June for a company called SpeechCare, and in July, Eric and I got married. That was a very busy couple months! I love my job; I work mainly with adults with intellectual and/or social disabilities to help improve their communication skills. My clients bring me so much joy! I love being able to help them communicate better with others. Eric and I are also loving being married. Living with Cystic Fibrosis has taught us to never take the time we’re given for granted, and we are making sure we soak up all the moments we’re given and go on plenty of fun adventures. 

My health has been a bit of a struggle in the past few years. I had a round of IV antibiotics in May and then again in September and January. I will be starting IVs within the next month for my next round of antibiotics. I started going to pulmonary rehabilitation to try to help stabilize my lung function, and that has helped condition me a little bit. I continue to do 3 breathing treatments a day and take over 30 pills a day. 

However, there is exciting news. I am most likely going to be in a study starting at the beginning of the summer sponsored by Vertex for the triple combination drugs. These drugs have the potential to address the underlying cause of CF and could help my lung function increase pretty dramatically. We have a lot of hope that this study could be transformative for my health. We are (not so) patiently waiting for the study to begin. 

These new drugs are all thanks to YOU. The Cystic Fibrosis Foundation funds CF research, like Vertex’s drug developments,  from the donations they receive throughout the year. In the 1950s, many people born with CF didn’t live through elementary school. Now, many people with CF are living into their 30s, 40s, 50s, and beyond, all thanks to the never-tiring efforts of the Cystic Fibrosis Foundation. 

My family and I will be walking at the Great Strides CF Walk on May 20th in Fort Worth, and we would be so honored to have you walk with us. Great Strides is an amazing event, and it really is special to be part of. We also would appreciate any donations to the CF Foundation. Every penny helps us get closer to our goal of finding a cure for Cystic Fibrosis. Click on the link below to sign up to walk with us and/or to donate to our team!

Thank you for your continued love, support, and prayers.

With love,

Emily

Comments

  1. My life is beautiful thanks to you, Mein Helfer. Lord Jesus in my life as a candle light in the darkness. You showed me the meaning of faith with your words. I know that even when I cried all day thinking about how to recover, you were not sleeping, you were dear to me. I contacted the herbal center Dr Itua, who lived in West Africa. A friend of mine here in Hamburg is also from Africa. She told me about African herbs but I was nervous. I am very afraid when it comes to Africa because I heard many terrible things about them because of my Christianity. god for direction, take a bold step and get in touch with him in the email and then move to WhatsApp, he asked me if I can come for treatment or I want a delivery, I told him I wanted to know him I buy ticket in 2 ways to Africa To meet Dr. Itua, I went there and I was speechless from the people I saw there. Patent, sick people. Itua is a god sent to the world, I told my pastor about what I am doing, Pastor Bill Scheer. We have a real battle beautifully with Spirit and Flesh. Adoration that same night. He prayed for me and asked me to lead. I spent 2 weeks and 2 days in Africa at Dr Itua Herbal Home. After the treatment, he asked me to meet his nurse for the HIV test when I did it. It was negative, I asked my friend to take me to another nearby hospital when I arrived, it was negative. I was overwhite with the result, but happy inside of me. We went with Dr. Itua, I thank him but I explain that I do not have enough to show him my appreciation, that he understands my situation, but I promise that he will testify about his good work. Thank God for my dear friend, Emma, I know I could be reading this now, I want to thank you. And many thanks to Dr. Itua Herbal Center. He gave me his calendar that I put on my wall in my house. Dr. Itua can also cure the following diseases ... Cancer, HIV, Herpes, Hepatitis B, Inflammatory Liver, Diabetis, Bladder Cancer,Colorectal Cancer,Breast Cancer,Kidney Cancer,Leukemia,Lun,Fribroid,Parkinson's disease,Inflammatory bowel disease ,Fibromyalgia, recover your ex. You can contact him by email or whatsapp, @ .. drituaherbalcenter@gmail.com, phone number .. + 2348149277967 .. He is a good doctor, talk to him kindly. I'm sure he will also listen to you.

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