God has blessed me tremendously with great friends and family who continue to set amazing examples of what it looks like to live a life full of love for Him. I honestly can't imagine myself without these family friends who have poured into my life and continue to pray for me and mentor me. I have grown to love these families as my own, joking with them at times but sharing my heart with them at others. Our little family of families has grown into a bigger group of people, and I am blessed by every single one of them. Even though we are far from perfect, I do believe that our "family" mirrors how Christians are supposed to fellowship with other believers, rejoicing in the good times and taking one another's burdens to God during the difficult times. These are the same people who decided to eat dinner with me in the hospital cafeteria, forgoing the good food across the street and eating the less-than-desirable hospital food. These people were with me when I got half of my right lung removed, sitting by my side even when I was dead asleep from pain medicines. These people cheered with me when I decided to attend Baylor, encouraging me to dream big for the future. These people are my FAMILY. I love them to pieces, and I am so beyond thankful for each and every one of them.
Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr
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