This weekend, I got to go home. Home, sweet home. It was amazing to be home for the weekend! To see my brother play basketball with my immediate family and grandparents, to have family movie night, to talk with my sister, to hug all of my family members around their necks. It was refreshing. Of course, I didn't really have a choice about coming home. I had to get my port flushed for it's monthly access. Which, by the way, was a pain. My port has continually been an issue. It has gotten fibrin sheaths, blood clots, and had to be resituated because it was moving around on top of a rib. This time, when my nurse went to access my port, it refused to draw back blood. My nurse tried three different times to get blood out of my port, but it just wouldn't work. Thankfully, it flushed fine. However, it's a little disheartening that it wouldn't work completely. The port is supposed to work for 10 years, yet it has been nothing but trouble since the beginning. I'm hoping, praying, that it works next month. I got the port to make life easier! Grrrr...sometimes things just don't turn out as great as they seem. (although not going to lie, home sweet home was as great as it seemed. :) )
Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb ...
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