Skip to main content

My poor skin

I cannot wait to be finished with my IV antibiotics. Granted, the IVs themselves haven't been that bad. The nausea has been manageable, and my port has behaved fairly well (at least, it's been well-behaved for my port). The worst part about this course of IVs has been dealing with the tape. The most common form of medical tape is called Tegaderm. I used to use this kind of tape on my PICC lines until my skin reacted violently against it a few years ago. So, I switched to IV3000. That tape has been life-saving for my skin. I managed to have many PICC lines and port accesses where my skin has stayed healthy. I hoped IV3000 would not have the same problems as Tegaderm. I mean, surely my skin can't react as badly as it had previously, right?


This past week and a half, my skin has gotten worse and worse. It is red and is covered in all these itchy bumps under the tape, but I can't do anything about it. My port has to be Protected somehow, and currently, I'm "allergic" to the only two options. It's time for plan C--find yet another tape that won't make me react so violently. For now, I'm hoping I am well enough on Thursday to stop my IVs so my skin can be free!! 

I was reaccessed today, so I saw how horrible my skin looked. Below is a picture. I can't wait to get rid of the tape!

Fellow CFers: If you have any ideas on how you keep your skin from getting irritated, please let me know! I could use the help. Thanks!


Post a Comment

Popular posts from this blog

CF Walk Letter 2018

Dear friends and family,
I hope this letter finds you doing well! My life looks pretty different this year from last year. In May, I graduated with my master’s in communication sciences and disorders. I started working as a speech-language pathologist in June for a company called SpeechCare, and in July, Eric and I got married. That was a very busy couple months! I love my job; I work mainly with adults with intellectual and/or social disabilities to help improve their communication skills. My clients bring me so much joy! I love being able to help them communicate better with others. Eric and I are also loving being married. Living with Cystic Fibrosis has taught us to never take the time we’re given for granted, and we are making sure we soak up all the moments we’re given and go on plenty of fun adventures. 
My health has been a bit of a struggle in the past few years. I had a round of IV antibiotics in May and then again in September and January. I will be starting IVs within the ne…

The day that was yesterday

Wow. What a day yesterday was. Here’s what happened:
At around 4:45, my hand became numb and tingly. Because I’m a knowledgeable SLP, my first thought was “oh my gosh I’m having a stroke”. Although the numbness was my first (and only) symptom, it was so bizarre how my hand just all of a sudden lost feeling in it. About 5-7 minutes into the numbness sensation, it started traveling up my arm and reached about midway up my forearm. Due to my history of a PE and being on Amicar (a blood clotter) right now because of a lung bleed, pretty much the only option was to go to the ER. I called CF clinic, and they confirmed that I should head over there. The ER is the most disgusting place, especially in the middle of cold and flu season. They also apparently have never heard of CF protocol because I had to demand to be put back in a room immediately and for everyone who came in my room to be gowned, masked, and gloved. From the beginning to the end of the 5 hour ER stay, it was pretty disastrous.…

Thankful in the hard times

With a disease like cystic fibrosis, it can be easy to get lost in all the pain, fear, and frustrations and lose sight of what we have to be thankful for. This year has been rough. I started the year with a blood clot, quickly followed by increasing worry about the state of health care in America, all while losing a significant amount of lung function and dealing with way too many lung bleeds. However, no matter how hard the year, I believe it’s always important to reflect on the many blessings we have been given. It’s too easy to wallow in self-pity and pain otherwise. So this post is dedicated to just that—thanking God for all He has given me. 
I’m thankful for... My new husband ❤️. As I’ve said before, many CFers wonder if they will ever find someone who will choose to love them day in and day out with all the stresses that come with cystic fibrosis. Being the spouse of someone with CF is not for the weak or faint of heart. My husband has taken a crash course in medical terms, health…