It's officially May 1st, which means it's Cystic Fibrosis Awareness Month. Because CF is a rare disease, very few people know about it who are not directly affected. CF Awareness Month is a time set aside each year to spread the word about cystic fibrosis, what it means for those who deal with it on a daily basis, and how people can help find a cure. In the spirit of the month, I've dedicated this blog to posting pictures that I've found on the internet that are working to raise awareness of our fight. I encourage you to post these pictures on Facebook, twitter, or Instagram so that your friends and relatives know that you're working to find a cure for CF!
Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr
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