Skip to main content

Great Strides Walk 2013

Today, my family and I went to the Austin Great Strides Walk for Cystic Fibrosis. We've participated in these walks for as long as I can remember. I've spoken at several of the events (some of my more recent speeches are actually on YouTube courtesy of my dad), and we always strive to raise as much money as possible for the CF Foundation. Although we didn't put together a huge team like we have in previous years, I still loved taking part in the walk. The strange thing is, I was one of the older patients with CF in attendance. Instead of my age adults,  I saw all these cute kids, playing with their brothers and sisters and throwing around complementary frisbees (with their leis around their necks, so others knew who had CF). I understand why pictures of children are always used to encourage outside donations. No child should EVER have to go through what I've gone through with CF. One of the precious girls who spoke was only 6 years old and had clearly been in the hospital a few times based on what she said (She actually said she enjoyed the hospital, besides getting a PICC line placed. I don't think I ever said that!) At my age, people are having a few more health issues, and it's not quite as moving to see a 20 year old succeeding with CF as it is to see an adorable 6 year old being forced to grow up way too fast because of a life-altering disease. Another part of the walk this year was to talk about who people were walking for.  I almost teared up when several people were asked to share. The care from all sorts of friends and family members was so tangible, even outdoors in an open space. I really don't know how any CFer makes it without a fantastic love and support system. CF isn't a disease a person can handle well on his or her own. You need a group of people who will encourage you, care for you (even when you don't want to be taken care of), challenge you, and cherish you. I saw this kind of community all around me at the walk today, and it made me so thankful for such a tight-knit, courageous group of people I call my CF brothers and sisters. 

Thank you to everyone who came out to the walk, donated money, and/or organized any part of the day today! You reminded me why we will not give up searching for a cure. God bless you guys!

Comments

Popular posts from this blog

Exciting news!!

It's been awhile since I've written a blog post. This semester has been busy--not only because of school stuff, but also because of exciting life things. About a month ago, the most amazing man got down on one knee and asked me to marry him! And of course, I said yes!

Honestly, there were times that I questioned if I would ever marry someone. Living with cystic fibrosis is hard. Choosing to be with someone with cystic fibrosis is almost crazy. Think about it; I am not a normal 23 year old. I have to plan and plan and plan to make sure I fit breathing treatments, exercise, and eating into my schedule. When I travel, I have to take a crazy amount of stuff with me--my Vest, nebulizers, compressor, pills, inhaled medication, puffers, and snacks. I have to make sure I sleep 8-9 hours a night because my body uses more energy than most, and I need sleep to fight infection. I have to have a course of IVs at least twice a year. It's hard to be spontaneous and adventurous because CF…

End of semester update

The past few weeks have been rough.

I got a cold about 3 weeks ago. No big deal, right? I hadn't gotten a cold in 10 months, which is basically a record for me. Surely my body could fight a cold off. Boy, was I wrong. After a week of fighting the cold, I started running a high fever and felt like a truck had run me over. I finally called the doctor for some reinforcements and started on an oral antibiotic and a course of steroids. Meanwhile, my school semester had just picked up, and I was down to the last 2 weeks of school. I had to finish a research paper, take 2 finals, write a final progress report for my practicum, and give really good, productive therapy. After 4 days on the antibiotic and steroids (Monday with one week of school left), I still was feeling crummy. I checked my oxygen and noticed that it was low--running at about 90-94%. I'm pretty positive the cold had turned into pneumonia. Even walking from my bedroom to my living room made me winded. It took me two-th…

A note to incoming college freshman

Recently, I was talking to a young woman who will be starting her freshman year of college in August. She didn't ask for my advice, but I gave it anyway. I tend to do that sometimes--blame my desire to help other people succeed as best as I can, I guess. Anyway, that got me thinking, what would I write if I were completely honest and vulnerable with incoming college freshman? What would I tell them that no one else seems to tell them? My freshman year was only 5 years ago, so my memories are still fresh. I came up with a list of things I found out to be true my freshman year. They may not all be true for you, but I hope and pray you gain some insight out of the lessons I learned.

1. Join a church and get plugged in to a small group. This should be your first order of business the minute you step on campus. Besides, you know, finding your dorm room and where all your classes are. Getting in a small group was literally the best thing I did freshman year. Not only did I start forming…