Skip to main content

Confession time

Okay, I have a confession to make.


I'm really not good at checking my blood sugar and keeping up with my Cystic Fibrosis Related Diabetes.

I have a really good perception of what my blood sugars are doing and can easily tell when they are high or low. I also know the typical pattern my blood sugars take.  And even though it doesn't take that long to check my levels, it's one more thing to think about. One more thing to keep track of. One more thing to have to remember. I have a diabetes appointment today, and honestly, I don't even know when the last time I checked my sugars at a normal time was (except for yesterday because I was trying to get numbers in my machine).When I can tell so easily when I'm low or high, it's no motivation to say that my health is suffering from not having those numbers, because it's not. It's also no motivation to say that the doctor could help me better if he had the data, because he really doesn't know how to help my CFRD. Because there's so little research about it, I've tried pretty much every diabetes medicine out there without much success. Now, I do a little bit of insulin in the morning, but my sugars are far from perfect.

It's no excuse that I'm not more on top of my CFRD. I know that it should become more of a priority. It's just so hard to focus on it when I am so bogged down with other more important stuff related to my health, like fitting in breathing treatments, gaining weight, taking my pills, and doing IV antibiotics. I'm not excited to go to my appointment this morning because I feel like it's a giant waste of time, but I have to have an endocrinologist, so I must go to the appointment. I don't know what the answer is to fixing my diabetes problem or how to make CFRD a bigger part of my health concerns, but I know I've got to get better about checking my sugars.
Labels:

Comments

Post a Comment

Popular posts from this blog

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb ...
4 comments
Read more

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr...
2 comments
Read more

COVID-19

It's been a while since I've written. To be honest, I've missed it. Not for the likes or the comments, but because I do my best processing through writing. And, as we all know, there's a lot to process right now. I decided now would be a good time to jump back into writing while I have the time. It feels like the world is in chaos. Coronavirus has lots of people on edge. Many of us are quarantined to our houses. Scientists are telling us it's going to get worse before it gets better. I saw today that we might have to practice social distancing for a year or longer until there is a vaccine. A year?? Humans are designed for community and to be around one another. How are we supposed to live like this for a year or longer? Right now, we are just starting to figure out what it means to live in the time of coronavirus. There is still so much unknown, and that leaves many of us, myself included, feeling anxious. So today, I wanted to share some positive things I've ...
3 comments
Read more