Skip to main content

Thankful Thursday

1. Puzzle time- My mom, sister and I have worked three puzzles over the last four days. We are just puzzle masters! :) I've loved having this time with my family to sit down and accomplish a goal. Honestly, we aren't even talking half the time because we are so focused on working the puzzle, but that's totally fine. For me, quality time doesn't always have to involve constant conversation; the silence is sometimes just as beautiful. Granted, none of the puzzles we have worked have been incredibly difficult (they've all been 500-piece puzzles), but we're working our way up into the more difficult ones.

2. Work- I have truly enjoyed work these past couple of weeks. My volunteering at a speech-pathology clinic confirms to me that I want to be a speech-pathologist. I want to help people regain or learn communication skills, building from the ground up. I want to take on that challenge! I know with speech-pathology, no two cases are exactly identical. I think that's so cool and a perfect occupation for me! I cannot wait to learn more about speech-pathology as I continue my schooling.

3. Zofran- If you've ever been nauseous and taken Zofran, you know what a great medicine this is. Zofran is an anti-nausea medication and has been pretty effective in controlling my issues with IV medications. Although it doesn't get rid of my nausea completely, it does significantly reduce the lovely side effects of the IV medicines. I do not know what I would do without Zofran these last few hospitalizations. Thank you, drug companies that made it!!

Comments

Popular posts from this blog

CF Walk Letter 2018

Dear friends and family,
I hope this letter finds you doing well! My life looks pretty different this year from last year. In May, I graduated with my master’s in communication sciences and disorders. I started working as a speech-language pathologist in June for a company called SpeechCare, and in July, Eric and I got married. That was a very busy couple months! I love my job; I work mainly with adults with intellectual and/or social disabilities to help improve their communication skills. My clients bring me so much joy! I love being able to help them communicate better with others. Eric and I are also loving being married. Living with Cystic Fibrosis has taught us to never take the time we’re given for granted, and we are making sure we soak up all the moments we’re given and go on plenty of fun adventures. 
My health has been a bit of a struggle in the past few years. I had a round of IV antibiotics in May and then again in September and January. I will be starting IVs within the ne…

The day that was yesterday

Wow. What a day yesterday was. Here’s what happened:
At around 4:45, my hand became numb and tingly. Because I’m a knowledgeable SLP, my first thought was “oh my gosh I’m having a stroke”. Although the numbness was my first (and only) symptom, it was so bizarre how my hand just all of a sudden lost feeling in it. About 5-7 minutes into the numbness sensation, it started traveling up my arm and reached about midway up my forearm. Due to my history of a PE and being on Amicar (a blood clotter) right now because of a lung bleed, pretty much the only option was to go to the ER. I called CF clinic, and they confirmed that I should head over there. The ER is the most disgusting place, especially in the middle of cold and flu season. They also apparently have never heard of CF protocol because I had to demand to be put back in a room immediately and for everyone who came in my room to be gowned, masked, and gloved. From the beginning to the end of the 5 hour ER stay, it was pretty disastrous.…

Thankful in the hard times

With a disease like cystic fibrosis, it can be easy to get lost in all the pain, fear, and frustrations and lose sight of what we have to be thankful for. This year has been rough. I started the year with a blood clot, quickly followed by increasing worry about the state of health care in America, all while losing a significant amount of lung function and dealing with way too many lung bleeds. However, no matter how hard the year, I believe it’s always important to reflect on the many blessings we have been given. It’s too easy to wallow in self-pity and pain otherwise. So this post is dedicated to just that—thanking God for all He has given me. 
I’m thankful for... My new husband ❤️. As I’ve said before, many CFers wonder if they will ever find someone who will choose to love them day in and day out with all the stresses that come with cystic fibrosis. Being the spouse of someone with CF is not for the weak or faint of heart. My husband has taken a crash course in medical terms, health…