Thursday, June 21, 2012


Freedom! I get deaccessed today!! I'm pretty much jumping up and down for joy. Who would have thought removing a .5 inch 20 gauge needle from a person would evoke such contentment?

I have now completed my unexpected two week course of IVs. Have you ever felt that time moved so slowly, you don't remember everything that took place within that time? That's kind of how I feel about these past two weeks. I feel like I've been on IVs for a good month at least. The hospital stay itself feels like it was ages ago. My perception of time is completely thrown off!

These IVs have been both a blessing and a curse. A blessing, obviously from the fact that I have energy now and a sense of breathing back. A curse, because for the past two weeks, I have had a piece of heavy duty IV 3000 tape slapped on my chest to cover my port, and my stomach has gotten somewhat messed up from the medications. I'm not going to complain--these IVs are what keep me alive and fighting! When you live with a chronic disease, you always have to weigh the positives and negatives of treatment, with a balanced quality of life being key. Getting rid of CF right now is not the goal (simply because a cure has not been found at this time). The goal is learning to live with CF, balancing my therapies and treatments with having a semi-normal life as I'm growing and maturing into a young woman.

That being said, I am grateful for IVs, but I am so flipping excited to finally be off of these medications!

Here's my last dose of one of my IVs. I'm thrilled to see this straight cylinder!

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