Skip to main content

Lost the battle

Today, Leslie lost her battle to Cystic Fibrosis after attempting to receive a double-lung transplant. Leslie was a family friend who grew up three houses down the street from my mom and was closely connected to both my mom's and dad's families. She battled for her life for 51 years and exceeded expectations of a normal CF life expectancy for a girl born in the 1960s.

I never knew Leslie, thanks to cross contamination issues (CF patients really shouldn't be in close contact with others because we can pass bacteria easily from one CFer to another). However, even with my limited knowledge about her, I looked up to her so much. When the doctors and nurses told me that a normal CF life expectancy was in the mid 30s, I felt comforted that Leslie continued to live a vibrant life. It's one thing to be told that you can live with CF, conquering the challenges it constantly presents. It's another thing to really know that anything is possible, including living with CF without limitations. I knew I could fight CF because Leslie was fighting alongside me. It sounds kind of silly, but Leslie's long battle gave me strength to fight my CF.

My aunt posted this facebook status as a tribute to Leslie's life. "Praying for the family of Leslie who lost her battle with Cystic Fibrosis today. Praying for God's peace and comfort as you mourn and move on with life. Leslie was a great warrior who knew how to LIVE!" Please pray with me for Leslie's family and friends as they mourn her loss after a valiant fight with CF. And even amid the heartache, know that Leslie is now joyously praising her Lord and Savior.

We need to fight against CF so that people do not have to experience the death of a loved one to such an awful disease, like Leslie's friends and family. I cannot wait for the day to be free from CF!! I'm praying for a cure to come quickly, and I hope you are, as well.


Popular posts from this blog

CF limits

I was always told I could do anything.

That CF couldn't stop me.

That, even though my day to day life looked a little different with treatments and pills and hospitalizations, I could still be "normal".

I'm finding out now that's not necessarily the case.

Growing up, I knew I was different, but I still functioned like a normal kid. The only time I remember CF limiting me was my freshman and sophomore years in high school. My doctor, mom, and I made the decision to sit out of marching band my freshman year and to keep me on the sidelines running the metronome and helping how I could without actually participating my sophomore year. Junior year I was finally able to join marching band, and my senior year I was a drum major, so CF didn't limit me that much by the end of it all. I finished college in four years with a major, a minor, honors, and summa cum laude. I am in grad school now and will graduate on time summa cum laude with my masters in speech pathology.…

Exciting news!!

It's been awhile since I've written a blog post. This semester has been busy--not only because of school stuff, but also because of exciting life things. About a month ago, the most amazing man got down on one knee and asked me to marry him! And of course, I said yes!

Honestly, there were times that I questioned if I would ever marry someone. Living with cystic fibrosis is hard. Choosing to be with someone with cystic fibrosis is almost crazy. Think about it; I am not a normal 23 year old. I have to plan and plan and plan to make sure I fit breathing treatments, exercise, and eating into my schedule. When I travel, I have to take a crazy amount of stuff with me--my Vest, nebulizers, compressor, pills, inhaled medication, puffers, and snacks. I have to make sure I sleep 8-9 hours a night because my body uses more energy than most, and I need sleep to fight infection. I have to have a course of IVs at least twice a year. It's hard to be spontaneous and adventurous because CF…

End of semester update

The past few weeks have been rough.

I got a cold about 3 weeks ago. No big deal, right? I hadn't gotten a cold in 10 months, which is basically a record for me. Surely my body could fight a cold off. Boy, was I wrong. After a week of fighting the cold, I started running a high fever and felt like a truck had run me over. I finally called the doctor for some reinforcements and started on an oral antibiotic and a course of steroids. Meanwhile, my school semester had just picked up, and I was down to the last 2 weeks of school. I had to finish a research paper, take 2 finals, write a final progress report for my practicum, and give really good, productive therapy. After 4 days on the antibiotic and steroids (Monday with one week of school left), I still was feeling crummy. I checked my oxygen and noticed that it was low--running at about 90-94%. I'm pretty positive the cold had turned into pneumonia. Even walking from my bedroom to my living room made me winded. It took me two-th…