Skip to main content

Motivation

Hey blogging world!

Four times a year, I receive the newest edition of the CF Roundtable, which is a newsletter for adults with CF. The newsletter always focuses on a different topic, such as GI issues, lung transplants, or living through pain. This time, the topic was on motivation and what keeps CFers going through the good times and the bad. Let me tell you, the CF community is full of some very wise people. Even though I haven't met a single person who wrote an article for the newsletter, I loved reading about what inspires them to stay positive and healthy. This is my own response to the edition's latest question: "What keeps you motivated?"

1. My family. They put their lives on hold for me when I am feeling sick. They keep me determined to fight illness with unending encouragement. They refuse to let me stay a single night in the hospital by myself, knowing that someone needs to keep an extra eye on things. They push me to succeed in everything I do. Even if I wanted to, they don't give me the option to let CF be an excuse to wallow in self-pity. They tell me not to wear myself out, and when I don't listen to them, they don't throw an "I told you so" back at me. They cry with me. They laugh with me. They tell me to have a dream and chase after it. Most importantly, they pray for me and desire to see my faith in God grow stronger and stronger. My family motivates me to never give up because they never give up on me.

2. My friends. Knowing about my CF, these awesome people consciously stepped toward friendship with a chronically ill girl. Personally, I think that says a lot about their character. When I do my treatments around them, they don't freak out. When I need someone to listen to my struggles, they are there. They help me out when I'm sick and make me laugh when I'm feeling down. They don't pity me (which gives them HUGE points in my book), but rather build me up, encourage me with their words, and empathize with me. I want to live life with them! But in order to be healthy enough to laugh, to hike, to make memories, to travel, to work, and to grow in friendship with them, I must take care of my body. I am motivated to keep living life because of the incredible friends God has blessed me with.

3. My future motivates me because I know my time on this earth is not over yet. I am not scared for the end of my life, nor am I dreading it, because I know I will be in Heaven with my Lord and Savior. However, I know God has a plan for my life on earth, and I am excited to see that plan unfold one day at a time.

4. Other CF patients motivate me to never give up, especially older patients. Because the CF Roundtable is written for adults, I am one of the younger patients with CF who receives the newsletter. I love reading stories about CFers who are navigating problems many older people face,like arthritis, memory loss, and dealing with kids and grandkids growing up, and being so overjoyed about having normal issues!  These people are living long, wonderful lives. And their number one piece of advice? Smile, remain joyful, and love life.

I could write more, but for now I will end this blog. I will leave you with this verse another CFer shared in her article on motivation.

"I have learned to be content whatever the circumstance." --Philippians 4:11

Amen and amen.

Comments

Popular posts from this blog

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb

The spirit of giving

It’s the end of 2017. That means it’s time to send in those end of year donations. Want to give to some amazing charities actually doing good in the world? I’ve compiled a list for you!  The Cystic Fibrosis Foundation- Obviously, I’m biased toward CFF. They fund amazing research that is saving people’s lives! Don’t you want to be part of that? Not only that, but 90 cents of every dollar goes directly to advocacy and CF research. If you donate to the Cystic Fibrosis Foundation, you know your money is going to be spent wisely and is going to make a difference. Since cystic fibrosis is an orphan disease (that means it’s really, really rare), people with CF rely on your donations to fund research. As well, Congress just cut the orphan drug tax credit, meaning companies are not going to get as much incentive for studying orphan diseases and creating drugs to treat them. The CF Foundation needs people like you to donate to CF research so we can find a cure for CF SOON. —www.cff.org