Skip to main content

Crazy week

Wow, what a week. Last Tuesday, I went to the doctor. My lungs weren't doing well, and I was having a pretty severe pain in my right middle lobe area. The appointment went in a completely unexpected direction. My doctor wanted to do a bronchoscopy Thursday to see if we were missing anything down in my lungs. Although a bronchoscopy is not an invasive surgery, I still had to have anesthesia and miss Thursday and Friday of work. My doctor also wanted me to follow the bronch up with three weeks of IV antibiotics, even though I just finished a course of antibiotics about a month ago. I was strongly opposed to missing work, but I still had the bronch Thursday and started IVs. The bronchoscopy went fine. My doctor took several sputum cultures from different areas of my lungs so if any new bacteria is invading them, we'll be able to see soon. The anesthesia from the surgery wiped me out--I had absolutely no energy Thursday through Sunday. I'm not sure if I've ever slept as much in one weekend as I did last weekend! Then, there's the fact that my lung is still hurting. I'm going in for further testing and scanning on Friday, so hopefully we'll have answers soon. For now, I'm just coughing as much as I can to clear my lungs and trying to ignore the pain. I also hope the three weeks of IV antibiotics fly by quickly! Let's be honest, I'm not a huge fan of how I feel when I'm on IVs. I'll be counting down the days until I can swim, shower, exercise, and sweat freely again without worrying about infecting my port! 


Popular posts from this blog

CF Walk Letter 2018

Dear friends and family,
I hope this letter finds you doing well! My life looks pretty different this year from last year. In May, I graduated with my master’s in communication sciences and disorders. I started working as a speech-language pathologist in June for a company called SpeechCare, and in July, Eric and I got married. That was a very busy couple months! I love my job; I work mainly with adults with intellectual and/or social disabilities to help improve their communication skills. My clients bring me so much joy! I love being able to help them communicate better with others. Eric and I are also loving being married. Living with Cystic Fibrosis has taught us to never take the time we’re given for granted, and we are making sure we soak up all the moments we’re given and go on plenty of fun adventures. 
My health has been a bit of a struggle in the past few years. I had a round of IV antibiotics in May and then again in September and January. I will be starting IVs within the ne…

The day that was yesterday

Wow. What a day yesterday was. Here’s what happened:
At around 4:45, my hand became numb and tingly. Because I’m a knowledgeable SLP, my first thought was “oh my gosh I’m having a stroke”. Although the numbness was my first (and only) symptom, it was so bizarre how my hand just all of a sudden lost feeling in it. About 5-7 minutes into the numbness sensation, it started traveling up my arm and reached about midway up my forearm. Due to my history of a PE and being on Amicar (a blood clotter) right now because of a lung bleed, pretty much the only option was to go to the ER. I called CF clinic, and they confirmed that I should head over there. The ER is the most disgusting place, especially in the middle of cold and flu season. They also apparently have never heard of CF protocol because I had to demand to be put back in a room immediately and for everyone who came in my room to be gowned, masked, and gloved. From the beginning to the end of the 5 hour ER stay, it was pretty disastrous.…

Thankful in the hard times

With a disease like cystic fibrosis, it can be easy to get lost in all the pain, fear, and frustrations and lose sight of what we have to be thankful for. This year has been rough. I started the year with a blood clot, quickly followed by increasing worry about the state of health care in America, all while losing a significant amount of lung function and dealing with way too many lung bleeds. However, no matter how hard the year, I believe it’s always important to reflect on the many blessings we have been given. It’s too easy to wallow in self-pity and pain otherwise. So this post is dedicated to just that—thanking God for all He has given me. 
I’m thankful for... My new husband ❤️. As I’ve said before, many CFers wonder if they will ever find someone who will choose to love them day in and day out with all the stresses that come with cystic fibrosis. Being the spouse of someone with CF is not for the weak or faint of heart. My husband has taken a crash course in medical terms, health…