Skip to main content

Celebrating the Small Victories

This may not seem like much....

but I've gained one pound!

I haven't seen a gain in any weight whatsoever in a year and a half. Instead, I've seen a steady decline, dropping pound after pound no matter how hard I've tried to beef up my caloric intake. I've had a lot to deal with over the past year and a half, no doubt. However, thoughts of feeding tubes and constantly intaking high caloric foods have been on my mind pretty consistently. To be honest, I'm pretty sick and tired of it.

I think my reason for gaining this pound is two fold. First, I'm on new enzymes that are very similar to the enzymes I was on before I lost all the weight. My old enzymes were taken off the market due to new FDA requirements, and I've had to play around with new enzymes and dosing since that happened. Finally, these new enzymes seem to be absorbing much better and helping me digest my food. It's wonderful not to have quite so many malabsorption problems!

Secondly, I'm religiously attending two toning classes at Baylor. I am definitely gaining muscle mass as a result, and, as we all know, muscle weighs more than fat. These muscles are helping my lungs work better, as well as building me an overall healthier body. Since coming to college last year, I have been exercising on a regular basis because I know that cardio workouts will help my lungs stay in shape, while muscle toning helps my body keep up with the daily demands I place on it.

So, yes, I'm happy that I weigh 93 pounds. It may not be a big victory, but a gain in any weight at this point provokes me to celebrate this achievement. I will get back to a healthy weight, one pound at a time!


Popular posts from this blog

Exciting news!!

It's been awhile since I've written a blog post. This semester has been busy--not only because of school stuff, but also because of exciting life things. About a month ago, the most amazing man got down on one knee and asked me to marry him! And of course, I said yes!

Honestly, there were times that I questioned if I would ever marry someone. Living with cystic fibrosis is hard. Choosing to be with someone with cystic fibrosis is almost crazy. Think about it; I am not a normal 23 year old. I have to plan and plan and plan to make sure I fit breathing treatments, exercise, and eating into my schedule. When I travel, I have to take a crazy amount of stuff with me--my Vest, nebulizers, compressor, pills, inhaled medication, puffers, and snacks. I have to make sure I sleep 8-9 hours a night because my body uses more energy than most, and I need sleep to fight infection. I have to have a course of IVs at least twice a year. It's hard to be spontaneous and adventurous because CF…

CF limits

I was always told I could do anything.

That CF couldn't stop me.

That, even though my day to day life looked a little different with treatments and pills and hospitalizations, I could still be "normal".

I'm finding out now that's not necessarily the case.

Growing up, I knew I was different, but I still functioned like a normal kid. The only time I remember CF limiting me was my freshman and sophomore years in high school. My doctor, mom, and I made the decision to sit out of marching band my freshman year and to keep me on the sidelines running the metronome and helping how I could without actually participating my sophomore year. Junior year I was finally able to join marching band, and my senior year I was a drum major, so CF didn't limit me that much by the end of it all. I finished college in four years with a major, a minor, honors, and summa cum laude. I am in grad school now and will graduate on time summa cum laude with my masters in speech pathology.…

The false narrative

Today I was at church with my parents. After the baby dedication, the pastor prayed over the families. It was a fine prayer until he said something along the lines of "raising kids in a Christian home is the best way to ensure kids grow up healthy". This is when I opened my eyes and tuned out the rest of the prayer. Honestly, this is where I tuned out the rest of the service. This false narrative is exactly why American Christianity can be so out of touch with the world.
No. No. No. This is not how God works. Yes, in a world without struggle and pain and heartache, I wouldn't have cystic fibrosis. But in our current, broken world God uses illness and weakness to prove His strength and power and love. If God wanted to heal me, I have full confidence that He could and that He would. I know there are people who have experienced divine healing. But in many cases, God uses our weaknesses rather than spontaneously healing us. In 2 Corinthians 12, Paul says, "But He (the Lo…