Skip to main content

Complacency

Today's topic on the blog: complacency.

Most CF people go through a phase of not being compliant with all their treatments. It just happens. There are so many therapies to keep track of, and it can get overwhelming. Many people with CF have a moment when they want to forget about their CF and just be "normal". This uncompliant phase lasts varying amounts of time, but usually it lasts until the person is hit over the head with the fact that they're only hurting themselves when they refuse to keep up with their treatments and that their health will go downhill fast without the help of current medications.

In my life, I've never really had a moment when I've flat out refused to be compliant. No, I'm not saying I've never skipped a treatment or never forgotten to take pills. But I've never deliberately chosen to ignore the advice of doctors and prescribed therapies. I guess I've always had a feeling that my doctors truly want what is best for me and that the medications I take really do work. My parents have always been extremely supportive of me while also teaching me that my CF treatments will help me live a longer, healthier life and that they are extremely important to maintain.

Compliance hasn't been a battle I've fought. However, recently I realized that, even though I've done my treatments and taken my medications, I've been complacent with the way I go about my CF life. I've done my therapies so I could check it off my to-do list, but I haven't necessarily put my best effort into keeping myself healthy. There's a difference between sitting and doing a breathing treatment for thirty minutes versus actively breathing and coughing from the bottom of my lungs during those thirty minutes of treatment. There's a difference between taking my pills and taking my pills while making sure I eat foods that are good for me but are also high calorie food options. There's a difference between going to the gym 5 days a week and pushing myself to work hard while going to the gym 5 days a week. Complacency is dangerous because it's easy to say that I'm doing everything I'm supposed to, when in reality I'm just checking something off my list without putting much effort into it. With CF, you can't afford to be complacent. At least, not if you want to stay as healthy as you can for as long as you can. As annoying as it is that being strong fighting CF takes a lot of time and can be exhausting, it's worth it in the long run.

I have no doubt I will go through periods of complacency again. That seems to be a constant struggle of mine. Maybe it's because of my type A personality, I get so focused on checking boxes off a list that I lose focus on doing things on that list the right way. But that's no excuse. If you see me becoming complacent, I give you permission to hit me over the head with the reality of CF so that I can snap out of that complacency and get back to work!

Comments

Popular posts from this blog

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb

The spirit of giving

It’s the end of 2017. That means it’s time to send in those end of year donations. Want to give to some amazing charities actually doing good in the world? I’ve compiled a list for you!  The Cystic Fibrosis Foundation- Obviously, I’m biased toward CFF. They fund amazing research that is saving people’s lives! Don’t you want to be part of that? Not only that, but 90 cents of every dollar goes directly to advocacy and CF research. If you donate to the Cystic Fibrosis Foundation, you know your money is going to be spent wisely and is going to make a difference. Since cystic fibrosis is an orphan disease (that means it’s really, really rare), people with CF rely on your donations to fund research. As well, Congress just cut the orphan drug tax credit, meaning companies are not going to get as much incentive for studying orphan diseases and creating drugs to treat them. The CF Foundation needs people like you to donate to CF research so we can find a cure for CF SOON. —www.cff.org