Tomorrow, I'm going in for a bronchoscopy at 8am. I have to be at the hospital at 6am, no food or drink after 11pm. For those of you who don't know, a bronchoscopy is a procedure where a doctor goes in via the oral cavity and through the throat to get to the lungs so he can take pictures of the lungs and get good, deep cultures of what bacteria is growing. It's helpful to make sure we aren't missing treating a bacteria growing in my lungs and causing me problems. I will have to have general anesthesia, which means there is the chance of complications related to that. If you would, please be sending prayers and good thoughts tomorrow, that the procedure is successful and that I don't have any complications. Thank you for your love and support!
Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr
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