I thank God for the invention of a port. Even though my port has not always cooperated with me, I am still so glad I have it! My port has allowed me to start my IV antibiotics from home instead of going in the hospital to have a PICC line placed. I don't have to deal with the disgusting feeling of the PICC line slithering through my vein and out my arm at the end of the two to three weeks of therapy. It's a lot easier to keep my port dry than to keep my PICC line arm dry. I can use both arms in the shower (you don't know how much easier it is to shower with 2 arms!) My chest isn't nearly as sensitive to the tape as my arm is. And, most importantly, I have easy access to blood through my port whenever I need levels drawn instead of nurses having to stick me multiple times, trying to find a vein. My veins have been so used and abused over the years, they are now minuscule in size and roll away from pressure points. Needless to say, it's pretty much impossible to hit one of my veins. With my port, once it's accessed, you can draw however much blood out of it that you need--assuming I don't have a blood clot or fibrin sheath. As a Cystic Fibrosis patient, I have yearly labs drawn to check my vitamin levels, kidney function, white blood count and red blood count, and Hemoglobin A1C. I had these levels drawn today, and I was reminded again of how grateful I am for a port that makes my blood easier and less painful to obtain!
Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb ...
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