On April 30th, I ran a 5k. Well, walk/jogged a 5k. In 47 minutes. I decided to sign up for this 5k six weeks prior because I was trying to push myself to exercise but I needed a goal in mind to keep to exercising. I wanted to finish the 5k in under an hour, so when I crossed the finish line at 47 minutes, I was pretty surprised that I went that much faster than I was expecting. Let me tell you, it felt great!! If you had told me a year ago that I would be participating in a 5k, I would laugh in your face. I didn't know I was capable of jogging that far! It wasn't easy--I definitely couldn't run the whole way, and my breathing was pretty rapid and deep. I'm sure everyone else running that race didn't know why I was having breathing difficulty or why running a 5k was such an accomplishment for me. But that doesn't matter--the only thing that matters is that I did it, and I know that it was a big accomplishment. I'm certainly not about to stop exercising. I enjoyed participating in the 5k and will likely run in another one, this next time hopefully running the whole way. I'm proud of my success in the 5k and look forward to continuing to push myself to exercise and stay fit!
Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr
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