However, one article I read in this fall newsletter absolutely broke my heart and brought me to anger. It's entitled "#MyLifeMatters" and is written by a young woman with CF who has recently been in the fight of her life to receive the new, potentially life-changing drug called Orkambi. This drug is supposed to target the underlying cause of CF and has given great hope to the CF community.
Unfortunately, as you'll read in her post, insurance and money reign supreme to health and humanity in today's society. And you know what? I'm sick of it! I understand that potentially life-saving drugs are expensive, and I get that the CF population is small. But the fact that insurance companies can put a price on someone's life is despicable. To think that Klyn could be able to breathe deeply for once in her life and run and climb mountains and work and become a productive member of society once again without her current health constraint in its full capacity, and yet she is denied the medicine she desperately needs is sending a message that she is too costly and her life is not worth the value of saving it. Obviously, this does not apply to all insurance companies, but this is an issue we need to think critically about and evaluate within our society. One day (hopefully soon), I may be able to be on some of these life savings drugs. When that day comes, will my life be worth saving, according to my health insurance? I sure hope so.
By Klyn ElsburyI left the interview and checked my voicemails. “Hi Klyn, this is Chris, from Vertex…” the message began. What followed was a 42-second scripted speech. I was denied. Some executive, somewhere, decided my life is not worth the cost of Orkambi. Little do they know, I still have my fifth wish. And I know this great spot in Utah if I need more…
Follow her story at mylifematters508.wordpress.com