Skip to main content

Lung bleeds Galore

Today was not a great day for health-related things. I had a post-IV appointment with my CF doctor's PA. I thought it was going to be a normal, quick appointment. However, about 30 minutes before I left for my appointment, I started coughing up blood. I mean, straight blood. This has now happened four times in a little more than three months--definitely not okay. The first bleed was towards the end of September. That bleed was definitely the biggest. I stained our front porch with my blood and filled a few Kleenexes. The second bleed was in November, and pretty soon after, I started IVs, hoping that would take care of the bleeding. Then, I had the 3rd bleed one day into the IVs. I was still hoping the IVs would get rid of any infection if that was the source of the bleeding. With this fourth bleed, however, I don't think infection is the culprit. At the doctor, they decided that I have to have a pulmonary embolization. An interventional radiologist does the procedure. I'll be out, and the IR will put contrast in to see where the bleeding is. Then, he'll go in and cauterize the bleeding areas. It's a relatively simple procedure, except for the fact that I never EVER do anything easily. The fact that I'm even having to have an embolization is rare in and of itself. And this will be my second one. All the numbers on my pulmonary lung function test stayed relatively stable, so that's good that my lung function hasn't dropped any. My weight was down 5 pounds, which is unfortunate. My stomach shrunk during my course of IVs combined with the stress of the last few weeks of school. All and all, it was a bit of a rough appointment. But that's CF life. You have good days, and you have not so good days. Even though I had hoped this break would be relatively free of health-crises, I am at peace knowing I can trust God through it all. 


Popular posts from this blog

Exciting news!!

It's been awhile since I've written a blog post. This semester has been busy--not only because of school stuff, but also because of exciting life things. About a month ago, the most amazing man got down on one knee and asked me to marry him! And of course, I said yes!

Honestly, there were times that I questioned if I would ever marry someone. Living with cystic fibrosis is hard. Choosing to be with someone with cystic fibrosis is almost crazy. Think about it; I am not a normal 23 year old. I have to plan and plan and plan to make sure I fit breathing treatments, exercise, and eating into my schedule. When I travel, I have to take a crazy amount of stuff with me--my Vest, nebulizers, compressor, pills, inhaled medication, puffers, and snacks. I have to make sure I sleep 8-9 hours a night because my body uses more energy than most, and I need sleep to fight infection. I have to have a course of IVs at least twice a year. It's hard to be spontaneous and adventurous because CF…

End of semester update

The past few weeks have been rough.

I got a cold about 3 weeks ago. No big deal, right? I hadn't gotten a cold in 10 months, which is basically a record for me. Surely my body could fight a cold off. Boy, was I wrong. After a week of fighting the cold, I started running a high fever and felt like a truck had run me over. I finally called the doctor for some reinforcements and started on an oral antibiotic and a course of steroids. Meanwhile, my school semester had just picked up, and I was down to the last 2 weeks of school. I had to finish a research paper, take 2 finals, write a final progress report for my practicum, and give really good, productive therapy. After 4 days on the antibiotic and steroids (Monday with one week of school left), I still was feeling crummy. I checked my oxygen and noticed that it was low--running at about 90-94%. I'm pretty positive the cold had turned into pneumonia. Even walking from my bedroom to my living room made me winded. It took me two-th…

A note to incoming college freshman

Recently, I was talking to a young woman who will be starting her freshman year of college in August. She didn't ask for my advice, but I gave it anyway. I tend to do that sometimes--blame my desire to help other people succeed as best as I can, I guess. Anyway, that got me thinking, what would I write if I were completely honest and vulnerable with incoming college freshman? What would I tell them that no one else seems to tell them? My freshman year was only 5 years ago, so my memories are still fresh. I came up with a list of things I found out to be true my freshman year. They may not all be true for you, but I hope and pray you gain some insight out of the lessons I learned.

1. Join a church and get plugged in to a small group. This should be your first order of business the minute you step on campus. Besides, you know, finding your dorm room and where all your classes are. Getting in a small group was literally the best thing I did freshman year. Not only did I start forming…