Skip to main content

Life

"Time flies when you're having fun."

"Yesterday is gone. Tomorrow has not yet come. We have only today. Let us begin." -Mother Teresa

"We can gain experience from the past, but we can't relive it; and we can hope for the future, but we don't know if there is one.” 

"Time is an illusion." -Albert Einstein

“How did it get so late so soon? It's night before it's afternoon. December is here before it's June. My goodness how the time has flewn. How did it get so late so soon?” -Dr. Seuss

"Do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble." -Matthew 6:34

If you can't tell, I've been a bit preoccupied lately. Between school work, essays, tests, Sigma Phi Lambda, spending time growing in the Lord, going to church, fellowshipping with my wonderfully amazing friends, and fitting in sleep, breathing treatments, time to fix pills and port accesses, I've been running around like a crazy woman the past month. Somedays, I wonder where my spring semester of my sophomore year has gone! However, I wouldn't trade this semester for anything. I've learned so much about myself, my God, and my friends. I am beginning to understand what it means to trust God in everything and to give up on being a control freak. I am seeing God's plan for my life unfold, one step at a time, and it is so exhilarating. 


Because of my trust in my Lord, I'm slowly starting to give up my worrying about the future. That is hard for me to do because I am such a typical Type A personality--driven, responsible, organized, a perfectionist. Let's be honest, worrying is one of the biggest problems in my spiritual walk. No doubt from the world's perspective, I have a lot to worry about-staying healthy being number 1 most often. However, what good does worrying do? CF can cause you to go into a panicky-existance, if you let it. Not to mention the fact that when you worry, you inadvertently tell God that He isn't big enough to handle your situation. In case you didn't know, THAT'S FALSE. 

This article, The Way I've Worried, is an article from the New York Times from the perspective of a woman who married a man with CF. While their marriage was cut short due to his death, the author has an interesting view on what she learned from her husband's life. When you have the time, I encourage you to read her article. I like the following quote she wrote describing her husband's attitude: "He had a tendency to cut through small talk, hospital red tape, indecision, regret — his internal compass set against wasting time." Don't we CF patients know this very, very well. 

Comments

Popular posts from this blog

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb ...

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr...

COVID-19

It's been a while since I've written. To be honest, I've missed it. Not for the likes or the comments, but because I do my best processing through writing. And, as we all know, there's a lot to process right now. I decided now would be a good time to jump back into writing while I have the time. It feels like the world is in chaos. Coronavirus has lots of people on edge. Many of us are quarantined to our houses. Scientists are telling us it's going to get worse before it gets better. I saw today that we might have to practice social distancing for a year or longer until there is a vaccine. A year?? Humans are designed for community and to be around one another. How are we supposed to live like this for a year or longer? Right now, we are just starting to figure out what it means to live in the time of coronavirus. There is still so much unknown, and that leaves many of us, myself included, feeling anxious. So today, I wanted to share some positive things I've ...