Skip to main content

Thankful Thursday

1. Fall Break- I'm so grateful for fall break! Even though its just one day off from school, I feel like I could use the break to relax and take a breather half-way through the semester. I have finished most of my homework for the weekend, so I really won't have much work to stress over. It's important to stop every once and awhile with the busyness of life and simply reflect on what's going on in life, putting aside stress and deadlines and focusing on the present. I plan on doing just that this weekend!

2. I'm thankful for the dedication of my professors to help me learn more about the world around me as well as my identity. Baylor professors truly care about their students, and you can see their passion for teaching in their actions. I love that my professors actually care about how I'm doing and want me to succeed in life.

3. CF studies- I'm participating in a CF study online this coming weekend. I have to blog for an hour on a special site for three days. Studies are the only way scientists can discover more about cystic fibrosis. I'm so thankful that people actually want to know more about CF and the struggles I go through on a daily basis. Because CF is rare, the general population knows very little about it. Research studies help people learn more about how CF affects me personally. Studies also provide researchers with the data they need to discover new treatment therapies to help CF patients stay healthier longer. All kinds of studies are incredibly useful to the CF community!

Comments

Popular posts from this blog

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb

The spirit of giving

It’s the end of 2017. That means it’s time to send in those end of year donations. Want to give to some amazing charities actually doing good in the world? I’ve compiled a list for you!  The Cystic Fibrosis Foundation- Obviously, I’m biased toward CFF. They fund amazing research that is saving people’s lives! Don’t you want to be part of that? Not only that, but 90 cents of every dollar goes directly to advocacy and CF research. If you donate to the Cystic Fibrosis Foundation, you know your money is going to be spent wisely and is going to make a difference. Since cystic fibrosis is an orphan disease (that means it’s really, really rare), people with CF rely on your donations to fund research. As well, Congress just cut the orphan drug tax credit, meaning companies are not going to get as much incentive for studying orphan diseases and creating drugs to treat them. The CF Foundation needs people like you to donate to CF research so we can find a cure for CF SOON. —www.cff.org