Skip to main content

CF summer life

Today, I start yet another round of IV antibiotics. I counted the number of times I've had IVs the other day, but I kept losing track. If I were to make a rough estimate, I'd say I've had 25 or so courses of IV antibiotics over my life. Needless to say, I'm used to the routine: get poked/taped up so my port stays accessed and sterile, run two different IVs every eight hours, flush the port with saline and heparin appropriately, get blood drawn twice a week, get port reaccessed once a week, run the course of antibiotics for three weeks, go to the doctor at the end to check PFTs (pulmonary function test), don't get the access site wet, shower strategically, take zofran (anti-nausea medicine) as often as possible, take naps frequently. When you've had heavy-duty IVs as often as I have, you know all the tricks. Let's be real, I'm pretty sure I know more than most nurses! But that's beside the point. IVs are a part of my cystic fibrosis journey. It's not a part that I enjoy, obviously, but it's necessary to keeping me healthy and strong. Simply put, my lungs need help to do their job, and IVs keep me going. 

I'm also scheduled for sinus surgery next Friday. I'm definitely not looking forward to the surgery. I'm used to anesthesia, but that is still probably by least favorite part of surgery. I don't like the feeling of losing control when the anesthesia gets into my body. To be honest, I tend to fight the sleepy feeling as long as possible until I just give up, close my eyes, and "go to sleep". I don't like waking up from anesthesia, either. I wake up disoriented, unsure of what happened during surgery or what the next step is in my recovery. And I despise not thinking clearly, which happens when I'm waking up from surgery. I could continue about all the reasons I don't like surgery, but instead, I'll say I'm extremely thankful for doctors who know what they're doing and who want to do what's best for me. I'm thankful for technology that allows for surgery to be performed relatively safely. I'm thankful that the surgery even exists so that I can keep fighting back against the damage CF does to my body. 

It's time to fight infection with all my strength and help from medical technology. CF ain't got nothin' on me! If you think about it, please be praying for my recovery process over the next few weeks. I am SO appreciative of all of your prayers, love, and words of encouragement. 

God is good! 


  1. Praying for you sweet girl! I am constantly encouraged by your brave words and your faith in God. He is constant and good and fills you up with courage and strength. --Callie :)

  2. Are you interested in attaining enlightenment and personal growth?

    Try doing the following two yoga exercises daily:

    Sodarshan Kriya Yoga

    Sat Nam Kriya Yoga

    Are you interested in preventing and curing cancer, Alzheimer's, high blood pressure, and many other common diseases using an inexpensive, natural indian spice called turmeric?

    Take two teaspoons full of turmeric powder mixed with a cup of warm soy milk (or any kind of non-dairy milk that you'd like). Also eat 2 or 3 black peppercorns along with it, as the pepper helps your body absorb the turmeric better. You also need fat for the turmeric to be absorbed properly, which is why drinking turmeric mixed in water won't work. You have to drink it with milk or some fatty based liquid. Do this twice a day and you will start to feel amazing within a couple of weeks.

    Lastly, please read the following two ancient indian scriptures which talk about the divine love of God:

    Ananda Vrindavan Campu PDF

    Govinda Lilamrta PDF

    If you have any questions about yoga, meditation, spirituality, or natural cures, feel free to email me at


Post a Comment

Popular posts from this blog

Exciting news!!

It's been awhile since I've written a blog post. This semester has been busy--not only because of school stuff, but also because of exciting life things. About a month ago, the most amazing man got down on one knee and asked me to marry him! And of course, I said yes!

Honestly, there were times that I questioned if I would ever marry someone. Living with cystic fibrosis is hard. Choosing to be with someone with cystic fibrosis is almost crazy. Think about it; I am not a normal 23 year old. I have to plan and plan and plan to make sure I fit breathing treatments, exercise, and eating into my schedule. When I travel, I have to take a crazy amount of stuff with me--my Vest, nebulizers, compressor, pills, inhaled medication, puffers, and snacks. I have to make sure I sleep 8-9 hours a night because my body uses more energy than most, and I need sleep to fight infection. I have to have a course of IVs at least twice a year. It's hard to be spontaneous and adventurous because CF…

CF limits

I was always told I could do anything.

That CF couldn't stop me.

That, even though my day to day life looked a little different with treatments and pills and hospitalizations, I could still be "normal".

I'm finding out now that's not necessarily the case.

Growing up, I knew I was different, but I still functioned like a normal kid. The only time I remember CF limiting me was my freshman and sophomore years in high school. My doctor, mom, and I made the decision to sit out of marching band my freshman year and to keep me on the sidelines running the metronome and helping how I could without actually participating my sophomore year. Junior year I was finally able to join marching band, and my senior year I was a drum major, so CF didn't limit me that much by the end of it all. I finished college in four years with a major, a minor, honors, and summa cum laude. I am in grad school now and will graduate on time summa cum laude with my masters in speech pathology.…

The false narrative

Today I was at church with my parents. After the baby dedication, the pastor prayed over the families. It was a fine prayer until he said something along the lines of "raising kids in a Christian home is the best way to ensure kids grow up healthy". This is when I opened my eyes and tuned out the rest of the prayer. Honestly, this is where I tuned out the rest of the service. This false narrative is exactly why American Christianity can be so out of touch with the world.
No. No. No. This is not how God works. Yes, in a world without struggle and pain and heartache, I wouldn't have cystic fibrosis. But in our current, broken world God uses illness and weakness to prove His strength and power and love. If God wanted to heal me, I have full confidence that He could and that He would. I know there are people who have experienced divine healing. But in many cases, God uses our weaknesses rather than spontaneously healing us. In 2 Corinthians 12, Paul says, "But He (the Lo…