Skip to main content

Wow, it's been awhile!

Dear blogging world,

It's been a long time since my last post! To say the least, the month of June has been a hustle and bustle of activity. I've been working at Baylor's speech pathology camp, which works to improve language and literacy of kids through intensive therapy. I've loved every second of my job in the reading department, although I have never been quite so exhausted. ;) We can already see such improvements in our clients!! It's an amazing feeling knowing that every day I spend pouring into my clients' lives, their future is changing for the better. And that fact alone makes the exhaustion, long hours spent decorating, and tiny annoyances all worthwhile. 

However, my health during the summer never seems to go as planned. If anyone is ever going to have any weird problems related to CF, it'll be me. Why? I have no idea. Last summer, it was the low blood pressure hospitalization and hasty sinus surgery. This summer, I'm having serious issues breathing. Right when I was supposed to be coming back to Waco, my lungs started feeling weird. I started having a dry, hacky cough that prevented me from sleeping through the night but didn't seem caused by a build up of bacteria in my lungs. I started on a six day course of steroids, which cleared up the cough beautifully...until the six days were over. Then, I started the cough all over again, except this time my right middle lobe of my lung aches every time I take a breath and feels like a knife is piercing me when I cough or take a deeper breath. I have no idea what's going on, and unfortunately I have to miss work Tuesday afternoon to go to the doctor. Lung pain like this is too serious to mess with. I just wish I didn't have to miss work! I hate letting my CF get in the way of me performing at my best. I'm upset about the fact that I'm going to miss seeing my Tuesday afternoon kids. I  despise that I can't even make it through a month of work without getting sick. It's more frustrating than I can describe to a non-CFer. 

Here's my plan of action for the next few days:
1. Pray for healing and answers to what's going on in my lungs.
2. Trust in God's timing.
3. Rest.
4. Give my best at work, even though I won't be there Tuesday.
5. And...oh yeah, REST.

That's all I have to go on right now. Hopefully I'll be feeling better in no time, but for now, I suppose I must learn to take it easy. 
Labels:

Comments

Post a Comment

Popular posts from this blog

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb ...
4 comments
Read more

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr...
2 comments
Read more

Traveling abroad

In May, I will be going on a mission trip with my church to the UK. I'm so excited to be a part of this mission team!! I know that God is going to work in and through us for His glory. However, I can't say I'm not nervous about taking care of all my health stuff while I'm over there. This will be my first international trip without my parents and first time to fly with all my medical equipment by myself. Even when my band flew to Seattle in high school, my mom was a chaperone and helped me check baggage, go through security and lug all my equipment around. This time, I'll have to manage all of that on my own (of course, the other team members will be with me, but I'll be the only one intricately connected to my CF and who actually knows what all I have to bring with me on the trip). On top of that, when we went to Europe for my make a wish trip, my Vest and compressor "burned up" due tonthe voltage difference, even though we used the power converter li...
3 comments
Read more