Skip to main content

Thankful Thursday

It's the third Thursday of November! It's crazy how fast this month is going. I have 7 new things that I'm thankful for this week. Enjoy :)

1. I'm thankful for the opportunity to participate in clinical trials. I recently got a call to participate in an awesome new Vertex study that has the potential to be an important discovery in the cf world (don't worry, I'll blog on this later). I'm so thankful that I have the time and the ability to participate in these studies and help make a difference in the cf community.

2. I'm thankful for scientists and researchers who have dedicated their lives to cf research. Without them, my life would be significantly different. I know cf isn't where the big bucks are, but I'm so thankful that there are people who are determined to find a cure!

3. I'm thankful for a good night of sleep. Sunday evening, I did not sleep well, and the next day, I was grouchy and struggled to stay awake in classes. I'm so thankful for the nights that I do sleep well and for all the great benefits of getting a good night of sleep.

4. I'm thankful for small victories. Yesterday at the gym, I was FINALLY able to jog for 1 minute and then walk for 1 minute for 20 minutes. I haven't been able to exercise that strenuously in awhile. Even though I would love to be able to run for longer than just a minute, I'm thankful for the small victories I see in my lung health.

5. I'm thankful for my UT Dallas professors who are kind, knowledgeable, and intelligent. I love learning from such an amazing group of clinical professionals.

6. I'm thankful for Pinterest so I can get new, creative therapy ideas!

7. I'm thankful for coffee. I definitely needed some extra caffeine this week, and I'm thankful for the simple joys of sipping on coffee in the mornings.

Comments

Post a Comment

Popular posts from this blog

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb ...
4 comments
Read more

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr...
2 comments
Read more

COVID-19

It's been a while since I've written. To be honest, I've missed it. Not for the likes or the comments, but because I do my best processing through writing. And, as we all know, there's a lot to process right now. I decided now would be a good time to jump back into writing while I have the time. It feels like the world is in chaos. Coronavirus has lots of people on edge. Many of us are quarantined to our houses. Scientists are telling us it's going to get worse before it gets better. I saw today that we might have to practice social distancing for a year or longer until there is a vaccine. A year?? Humans are designed for community and to be around one another. How are we supposed to live like this for a year or longer? Right now, we are just starting to figure out what it means to live in the time of coronavirus. There is still so much unknown, and that leaves many of us, myself included, feeling anxious. So today, I wanted to share some positive things I've ...
3 comments
Read more