Skip to main content

Keep my eyes above the waves

Ever since last Thursday, I feel like I've taken a beating. Let me give you a short run down of my week...

I got a parking ticket last Thursday bcause my handicap placard wasn't in the correct position (even though it was clearly visible and was in an appropriate position).
I got a cold and have been feeling grossly congested.
My phone has been broken. First the texting wouldn't work; then when the texting was fixed, I couldn't make or receive any phone calls. If you know me at all, you know I know nothing about technology and just need it to work. 
It's been ridiculously cold and dreary outside--I don't enjoy the cold. 
I'm overwhelmed with school work, planning different things, and life in general. 
I haven't gotten much sleep in the past week, and I do NOT do well without rest.
I found out my dog had a tumor on Friday that, if not taken care of quickly, she would die from it. She had surgery on Wednesday and was expected to recover without a problem, but she died unexpectedly in surgery.

That's really just the tip of the iceberg. I think I've cried more times in the past week than I have in a very long time. This week has broken me. I've been knocked to my knees and blown to the ground. Literally, I don't know what to do with the past 7 days. The song, "Oceans" by Hillsong has been my go-to. I can't count the number of times I've listened to it. One of my favorite lines of the whole song is, "You've never failed, and You won't stop now." How comforting is that! My God is always faithful. He will never ever EVER fail me. He knows my heart and my future. Even when I'm crushed, lost, overwhelmed, and feeling darkness press around me, my soul will rest in my Father. He alone is good. He alone is sovereign. He alone I can trust, even in a week like this one. In oceans deep my faith will stand.

Oceans

You call me out upon the waters
The great unknown where feet may fail
And there I find You in the mystery
In oceans deep
My faith will stand

And I will call upon Your name
And keep my eyes above the waves
When oceans rise
My soul will rest in Your embrace
For I am Yours and You are mine

Your grace abounds in deepest waters
Your sovereign hand
Will be my guide
Where feet may fail and fear surrounds me
You've never failed and You won't start now

So I will call upon Your name
And keep my eyes above the waves
When oceans rise
My soul will rest in Your embrace
For I am Yours and You are mine

Spirit lead me where my trust is without borders
Let me walk upon the waters
Wherever You would call me
Take me deeper than my feet could ever wander
And my faith will be made stronger
In the presence of my Savior
[x6]

I will call upon Your Name
Keep my eyes above the waves
My soul will rest in Your embrace
I am Yours and You are mine


Comments

Post a Comment

Popular posts from this blog

CF Letter 2019

Dear friends and family, I hope you all are having a happy and healthy 2019! The Great Strides CF Walk is just around the corner, and we are gearing up for a great walk day! Since my last CF Walk letter, my health has had its ups and downs. Just before the CF walk last year, I got the sickest I have been in awhile and had to fight off pneumonia with the help of 4 weeks of IVs. I also had to do IV antibiotics in August and November. However, I have stayed relatively healthy in 2019, and for that, I am extremely grateful! Although I’ve had to fight off 2 colds, my body has been able to get through it without needing IV antibiotics. While I know I will need another round of IVs eventually, I am thoroughly enjoying being IV free. I credit this to the amazing CF therapies available to me, my compliance to my treatments, and all of your prayers for my health. I continue to take 30+ pills a day including enzymes to digest my food, vitamins and supplements that my body cannot absorb ...
4 comments
Read more

CF Letter 2020

Dear friends and family, It's May 2020, which means it is another CF Awareness month and another time to talk about all the amazing things happening in the CF world! This has been a very good year in the CF community. In October of 2019, Trikafta was approved by the FDA for all people with CF with at least one copy of the dF508 mutation. 90% of people with CF have at least one copy of this specific mutation. This is a HUGE deal in the CF community because it is one of a handful of drugs that addresses the underlying cause of CF and the only drug that such a huge percentage of people with CF can take. Trikafta is a total game-changer for so many, including me. I have gained stability, I require fewer IV antibiotics, I gained lung function I thought was long gone, and I feel like I can plan things in my life again. The hard work of the CF Foundation, willing researchers who continue to search for a cure and medicines that will increase quality of life, and the generous donations fr...
2 comments
Read more

Traveling abroad

In May, I will be going on a mission trip with my church to the UK. I'm so excited to be a part of this mission team!! I know that God is going to work in and through us for His glory. However, I can't say I'm not nervous about taking care of all my health stuff while I'm over there. This will be my first international trip without my parents and first time to fly with all my medical equipment by myself. Even when my band flew to Seattle in high school, my mom was a chaperone and helped me check baggage, go through security and lug all my equipment around. This time, I'll have to manage all of that on my own (of course, the other team members will be with me, but I'll be the only one intricately connected to my CF and who actually knows what all I have to bring with me on the trip). On top of that, when we went to Europe for my make a wish trip, my Vest and compressor "burned up" due tonthe voltage difference, even though we used the power converter li...
3 comments
Read more