Skip to main content

My CF Story

Everyone has a story. People with cystic fibrosis are no different. No two cases of CF are the same, which makes the disease even more complicated and confusing. My story is nothing special--just the tale of a girl living, breathing, and succeeding with CF.

I was officially diagnosed with CF when I was two weeks old, but I had maconium illius surgery the day I was born, which is often an indicator of CF. Obviously, CF is a pretty devastating diagnoses for any parent to hear, especially for new parents of twin baby girls (that's right, I'm a twin. My sister doesn't have CF).  Yet I have been blessed with amazing parents who refuse to let my CF define who I am and who I'm growing up to be. They taught me to remain compliant with my treatments and therapies in order to stay as healthy as possible while encouraging me to never give up my dreams and to live a life that glorifies God with everything I do. 

Because of my CF, I do three to four breathing treatments a day, take about 30 pills a day, receive IV antibiotics relatively frequently, and have many, many, many doctors. I have gone "under the knife" more times than I can count and navigate the medical system without batting an eyelash. Like many CF patients, I struggle to maintain my weight. I am supposed to eat double the amount of calories of a normal person, which isn't as fun as it might seem! I also have cystic fibrosis related diabetes, which is unlike type 1 or type 2 diabetes. CFRD is a guessing game, and I never know exactly how my blood sugars are going to react on a daily basis.

CF is a chronic, progressive illness. Therefore, my health has gotten worse over time. Hospitalizations, medications, and surgeries have become more frequent and intense. I know that my health has changed over the span of my life and will continue to do so. Yet I am doing everything I can to stay as healthy as possible and to have a great quality of life. I am going to live with purpose, drive, and determination. I have hope and confidence in my God and His plans for me. May I never get bored with life and never stop inspiring others to find joy and contentment in every situation.


Popular posts from this blog

Exciting news!!

It's been awhile since I've written a blog post. This semester has been busy--not only because of school stuff, but also because of exciting life things. About a month ago, the most amazing man got down on one knee and asked me to marry him! And of course, I said yes!

Honestly, there were times that I questioned if I would ever marry someone. Living with cystic fibrosis is hard. Choosing to be with someone with cystic fibrosis is almost crazy. Think about it; I am not a normal 23 year old. I have to plan and plan and plan to make sure I fit breathing treatments, exercise, and eating into my schedule. When I travel, I have to take a crazy amount of stuff with me--my Vest, nebulizers, compressor, pills, inhaled medication, puffers, and snacks. I have to make sure I sleep 8-9 hours a night because my body uses more energy than most, and I need sleep to fight infection. I have to have a course of IVs at least twice a year. It's hard to be spontaneous and adventurous because CF…

End of semester update

The past few weeks have been rough.

I got a cold about 3 weeks ago. No big deal, right? I hadn't gotten a cold in 10 months, which is basically a record for me. Surely my body could fight a cold off. Boy, was I wrong. After a week of fighting the cold, I started running a high fever and felt like a truck had run me over. I finally called the doctor for some reinforcements and started on an oral antibiotic and a course of steroids. Meanwhile, my school semester had just picked up, and I was down to the last 2 weeks of school. I had to finish a research paper, take 2 finals, write a final progress report for my practicum, and give really good, productive therapy. After 4 days on the antibiotic and steroids (Monday with one week of school left), I still was feeling crummy. I checked my oxygen and noticed that it was low--running at about 90-94%. I'm pretty positive the cold had turned into pneumonia. Even walking from my bedroom to my living room made me winded. It took me two-th…

A note to incoming college freshman

Recently, I was talking to a young woman who will be starting her freshman year of college in August. She didn't ask for my advice, but I gave it anyway. I tend to do that sometimes--blame my desire to help other people succeed as best as I can, I guess. Anyway, that got me thinking, what would I write if I were completely honest and vulnerable with incoming college freshman? What would I tell them that no one else seems to tell them? My freshman year was only 5 years ago, so my memories are still fresh. I came up with a list of things I found out to be true my freshman year. They may not all be true for you, but I hope and pray you gain some insight out of the lessons I learned.

1. Join a church and get plugged in to a small group. This should be your first order of business the minute you step on campus. Besides, you know, finding your dorm room and where all your classes are. Getting in a small group was literally the best thing I did freshman year. Not only did I start forming…